Saturday, March 29, 2008

H. Benjamin B.?

Well, I’m a four-legged critter now! Yup, I’m on crutches. The docs want me to keep as much weight off this hip joint as possible, so I stopped by St. Vincent De Paul and found a pair for $5. Have you ever tried to get around on crutches? Especially when it entails holding one leg in the air? Did I mention that it hurts to hold the leg up in the air like that?

I figure that for all the stuff I’ve given SVDP over the years I could use some of their help now. I still have a bunch of stuff to go over there if I ever get it all pulled together.

But, I may just have to move the computer back into the bedroom. I’ve had a low-grade fever again today, and slept quite a bit this afternoon. And then there’s the “keep off my hip” thing going on.

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Maybe you girls out there can help me. I’ve discussed the Beau lines on my finger nails before. The chemo has really weakened my nails. I keep them trimmed as short as I can and they still split, or maybe I should say “flake.” Is there anything that I can do, something that I can buy and apply, to help keep the nails from coming apart so easily?

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I got my “You Don’t Have To Be Afraid Of Cancer Anymore” book today. Now where have I heard that theme before? :-P

There isn’t a lot in it specifically about esophageal cancer, but they do cover quite a lot of the rest of them. So it looks like I’ll have to get some reading in.

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BTW, I figure if I commit myself, I’ll try harder to get something done. So, with Ben’s help, I plan on posting my PET Scans tomorrow so you can see that I’m not pulling someone’s leg through all this.

If I don’t get it posted, bitch at me about it, will you? “Bitch avoidance” is a good source of motivation, but you have to bitch occasionally to make it work!! But the carrot works much better than the stick most of the time!

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BTW, I didn’t mention that yesterday I was awakened from a sound sleep about 9:00AM by a group of people at my front door. I got up, answered the door, and was about to point out my “No Soliciting” sticker on the door, preparing to do battle with a group of Jehovah’s Witness folks who don’t believe that I mean what I say when I post the sign, when I recognized my aunt and my mother in the group! I was too focused on the guy in front.

Turns out I was half right; the guy in front was my Aunt Bert’s husband, and I apologize that I can’t remember his name, but he is/was a pastor of a church out west of the Fox Valley.

So, I invited them in, ran, OK hobbled, off to the bedroom to put some clothes on, and came back for a chat. It was heart-warming that, in these days of high gas prices, they would travel all that way, stop by to pick up my mom, and then to drive up here to GB.

They invited me out to dinner, by then it was 11:00, but I still hadn’t taken all my meds yet. I had grabbed my pain meds right away. It’s amazing how quickly we become addicted to those darn things when we have severe pain on occasion.

I had to regretfully decline. Without being prepared ahead of time to go out, I can’t just grab my coat and go anymore. I have some meds that I need to take on an empty stomach. Then I have to wait an hour before there are meds that I have to take on a full stomach.

I don’t know if you remember my ‘Carafate fiasco;’ Carafate 4 times a day, nothing to eat two hours before and one hour after, meant that for 12 hours a day I couldn’t eat, OK, make that suck Ensure. And, as sick as I was, that was about all the time I was awake!

So, although things have gotten somewhat better, it isn’t by a whole heck of a lot. And I do notice when I miss my pain meds, now! Like today! Oh, well.

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“H. Benjamin B.” That’s how they have me listed now at the Aurora Baycare Medical Center. Somehow, they’ve combined my name, H. Benjamin, along with my father’s name, Benjamin B., into one multi-purpose name. I suppose, if my father ever came back, that they want to have all their bases covered. It gives me shivers all over to know that they are on the ball, paying so much attention to the details of my medical treatment.

So, I’m off to wait for Ben to come home and to browse my new book. But one question I have on my mind is, how are you prepared for cancer if it should ever show up in your life? Most of what Conventional Medicine does is move money from your insurance company’s pockets to theirs and does little to prolong your life. Read the medical journals, or read the journalists who report on them. Then start taking the vitamins and herbals that are recommended to prevent cancer. You don’t want what I have, trust me!

Kunolunkwa, y te quiero mucho!

Thursday, March 27, 2008

Now I’m Depressed!

No, not THAT way! Let me explain, officer.

I went in Monday to see a doctor only to hear some not-so-good news. It means that I’m gonna hafta do some work. The news on Monday precipitated a visit with a doctor on Tuesday. The visit on Tuesday turned out to be unnecessary because the imagery that was obtained wasn’t the proper imagery needed for this doctor.

I pointed out that a CT scan was taken, but was told that a high-contrast media was necessary to see what they wanted to see. Today’s CT scan was supposed to take care of that.

So I did my research and found that my Power Port—I’m a Power Ranger now—was capable of accepting the pressures necessary to get all the contrast media into my body in a short period of time. The last time I had a CT w/ contrast I had media running down my arm from the IV. I didn’t want that happening again.

So, I mentioned it to the tech escorting me into the bowels of the department. “Oh, we don’t need to worry about that. We don’t need it for this scan.” WTF? I would have stopped but I was already hobbling as slow as I could, I mean as fast as I could. Oh, you know what I mean.

So, if they don’t need the contrast, why am I doing the scams all over again? I mean “scans.” Got bills that need paying, Aurora? I got an insurance company that’ll pay.

I have been joking lately that I’ve finally reached the group that includes the females, the aged, and the infirmed. I just thought that I’d never make all three categories at once, “Don’t you worry your pretty little head about it. Just shut up and get on the table.” Ladies, I do know how you feel, now.

I asked what the pictures showed since the x-ray taken on 3/19 showed an unremarkable hip joint. The tech, quite properly I suppose, stated that he just runs them and isn’t authorized to interpret them. But he did say that they did look just like hip joints. They looked at both of them. His attempt at humor was appreciated, although not by much. :-)

I mentioned after the CT scam was done, that I needed to see someone about the results of my last two PET scans. To make a long story short—now there’s something new—the tech took me upstairs to the 3rd floor and talked to them about what I didn’t get. Then he took me back down stairs to wait. There are good employees working there. To bad the system wasn’t as good.

Finally an employee came out and said that it would take 2 hours to get what I wanted and asked if I wanted to wait.

I asked if they could send the discs to me like they had on Wednesday. “Oh we can’t do that; these can only go to a doctor through the mail.” So, I get to waste fuel running over to the hospital tomorrow.

Can you see why I get confused?

Why can’t they have procedures in place, with a little check mark next to my name in my records, so they know that, after the doctor has had the chance to surprise me, they can somehow—again, following a procedure—deliver into my sweaty little hands the imagery that I’m looking for?

And it seems that the customer, I mean the patient, needs a champion to get things done. Dr. Patel got me the first two scans. I tried on my own this last time to get the imagery I wanted and you know what happened there. And today, I had a champion in the guise of a technician get me what I wanted, if I’m not being premature.

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So I’ve been playing on the computer trying to get some things done. But I was so-o-o-o groggy. I trundled off to bed in the middle of the afternoon to see if I could reduce the effects of the meds. I fell asleep for a while, but I had strange dreams. I dreamt I was in pain.

Now, I want the imagery from the PET Scans so I can determine the cancerous areas so I can ignore the pain from those areas. That way anything new will be from those areas not associated with cancer. But it’s hard to do that having a 20 second look at a computer screen while the doctor is manipulating the image.

And does it matter if you have real pain or if the pain is from a dream state? It still hurts. And I’m not so sure that it wasn’t real pain that faded just before I woke up.

So, we’ll see how I sleep tonight.

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I did order a book on Cancer. Now, Amy sent a book on cancer that has a lot of good info, but not what I’m looking for.

Have you answered the question what will you do if and when, God Forbid, you find out that you have cancer. What will you do?

I was already so sick, thinking that it was just gastritis, that I didn’t know what to do. In contrast, Bill Sardi comments, “Strikingly, when asked, most oncologists (cancer doctors) would not elect to undergo these same treatments if diagnosed with cancer.”

What to do, what to do? Since I’m on my own now, with the love and support of my family and you guys—Thanks, BTW—I need to figure out where to go from here. And, if I can figure out what you can do to keep yourself from getting into my situation, then at least I will have helped my fellow man as a bad example!! :-)

So, I’ve already downloaded the couple of .pdfs to read. I’ll print them out soon and get them digested. Then I’ll have a 500+ page book to read when it gets here.

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Have I mentioned lately how much I appreciate my kids? When Ben made his comment about the barstools and I picked up on how good an idea that was, I didn’t realize how good that would make me feel. Although I didn’t get the counter done like I wanted, I did get a little further today, and every litter bit hurts, I mean every little bit helps!

So, as you can see, it can get kinda confusing when your world doesn’t make sense. And what’s worse is that when the people who have your life in their hands don’t make sense. Or at least, doesn’t communicate anything approaching sense.

Oh, and hey! Did I mention that I’m starting mouth sores again? Mouth sores? Without chemo?

I need to go in to the hospital tomorrow because I also need to see if I can pick up a couple of letters from one of the doctors that I’ve been waiting on now for a month? The nurses say that he’s having to do the work of 2-1/2 doctors. That makes me feel real confident about the level of care I got, too!!

Anyway, kunolunkwa, y te quiero. And if you happen to see my kids, make sure that YOU tell them that I love them, just in case I haven’t told them lately.

Wednesday, March 26, 2008

Well THAT Was Fun!

I had to go out this AM to take care of some paperwork, so while I was out I started looking for a barstool. Since I’ve gotten into drinking so heavily lately…. No, wait, that’s a different story.

I was talking with Ben yesterday, or last night, I don’t remember, and somehow we got on the subject of a barstool. I’m supposed to keep the weight off my left hip and I still want to get the dishes done and the like, so why not work from a barstool?

BTW, I got the X-ray results back from my PCP. The conclusion was that it was an “Unremarkable x-rays of the left hip.” OK, now I’m confused.

Anyway, while I was out I stopped at St. Vincent’s, Goodwill, and Wal Mart looking for a barstool and found nothing worth mentioning. I checked out The Men’s Mall and found a good stool, padded, made in Tennessee, for less than $13. I bought it, brought it home and started using it in the kitchen. Not only did I get my dishes done, but I also got most of the counter top clean, and especially the sink area. That stainless steel really needs the attention or it looks like crap!

So, do you think I’m felling better? If it weren’t for the hip, I’d be getting a lot more done. Tomorrow, I’ll get the rest of the counter tops and the stovetop done!!! Now THAT will take some effort! BTW, I use a product called Greased Lightning. It really seems to work well for me!

I’m just wondering how I’ll get the kitchen floor washed from my barstool. Any ideas?

While I was out, I found that the prices for some things are cheaper at TMM than they are at WM! So I picked up 4 small Corelle bowls. I’ve wanted some “rice bowls” for a long time now. I got used to them when an old girlfriend gave me a set. She was younger then. So was I!

Anyway, I figured now was the time to get them. I know, I know; I’ve been trying to get rid of things and actually discourage folks from getting me “things.” I’m already sorting through what I have so the kids won’t have to at some later point in time, down the road. But I just couldn’t resist. And they were cheaper than at Wal Mart! How’s that for justification?

I found out today that I can actually drop off to sleep, in the middle of the day, sitting upright in a kitchen chair and start dreaming right then and there! Aren’t drugs wonderful?

You’re not going to believe this, but the stink I made at the ABCMC on Tuesday morning about my imagery and records actually resulted in getting a CD of PET scans from 12/14 and 3/21 in the mail today. Are you shocked? Don’t be.

The first two PET Scans came to me on two different CDs for a reason; there are too many files to fit two scans on one CD. So when I received one CD today, I knew something was up. And I was right. The files that I wanted from the last scan on the 21rst weren’t there. There just wasn’t enough room on the CD. Did you miss that? The very important files that I wanted to peruse to understand what’s going on with me a little better weren’t there.

Do you know what I would call any company that provided me with service like this in the private sector? A former supplier.

I’ll have to see if I can’t get things straightened out tomorrow.

Well, it’s off to take some more drugs!! Kunolunkwa, y te quiero!

Tuesday, March 25, 2008

Not Much To Say Tonight, Again

Still recovering from the shock, I guess. And getting up early today for a consultation didn't help. And I'm still kinda wondering what for.

I reported to the doctor's office for my consult and didn't seem to get anywhere. I had to fill out all the paperwork all over again. If these folks were in charge of Homeland Security, I'd sleep a lot easier at night. They had my father listed on my account!! Then, come to find out, before they can talk to me enough to make any sense--although they did charge me for today's consult--they need to take a CT scan which has now been scheduled for Thursday.

I tried to get the imagery from my last 2 PET Scans and I'm sure that you can guess how that went. You can tell that they are socialists and not laissez-faire capitalists. I came home empty handed with some weak promises from a receptionist who honestly said that she didn't know what was up. But I do admire her company spirit for expecting me to believe her promises after overhearing her phone calls to the "people who know."

I'm told that the new pain meds, at the levels I have, will make me drowsy for a while, so I did take a short nap today but it didn't seem to help. I'm also running a low-grade fever again.

I called Nancy today 'cause she doesn't have Internet service and broke the news to her. While on the phone with her, my daughter called so I talked with Amy for a while as well.

I've been trying to get some paperwork done, but concentration does appear to be an issue. I've been complaining to the kids that my success rate with Sudoku has been suffering lately so I should have had somewhat of a clue to what is going on. But I guess I'll just have to see what I can do!

So, before I go back and write a few checks, I thought I'd keep you guys updated.

It's not as hard to write about this as you would think. Mostly because it's just about someone that I'm pretty familiar with, I tell myself. I've told Ben that he can be expecting jokes about the situation from me as I get used to it. But, at least, as Cuz says, I have options of what I can do.

You guys, on the other hand, don't have much in the way of options if you continue to keep in contact with me and my blog. And it's that "not being able to do anything" thing that makes it hard on you. I know that; I'm very aware of that. And I feel very sorry for you guys.

So, hang in there and I'm sure that we'll all get through this just fine!

Kunolunkwa, y te quiero!

Monday, March 24, 2008

Ain’t Gonna Say A Whole Lot…

…tonight; I’ll need some time to digest what I’ve heard today. I hope that you’re sitting down!

The cancer has spread big time! It’s all over my body. That hip joint issue—cancer. There is cancer in the liver and lungs and just all over. And the hip issue just started the last couple of weeks. Hmmmmm.

The times of three to six months were bandied about today.

I wondered what was up when Dr. Himmy “got sick.” And I wondered when Nurse Beth was invited to join in my consultation. I still don’t know why she was there, though.

But it looks like I’d better use up my gift cards pretty quick—I had a Caesar Salad tonight and it took them forever to run the gift cards through—before I expire! :-) And, again, I do appreciate the thought behind the gift cards.

But I did get some more Packer Candy, tonight. The current stuff and the NSAID just aren’t handling the pain. The doc wants me to limit using that hip joint. He has ordered me to ride the cane for right now, and using my handicap sticker. I will be even more groggy, and might even need to rent a wheelchair. I may even move the computer back into the bedroom. And I just got most of the paperwork off the floor in the office!!!!

I also have to see another doctor tomorrow bright and early so it looks like I can‘t get too reacquainted with my old friends Ron Bacardi and Jose Quervo tonight. This doc will tell me what they have to do to my joint to provide some “Quality of Life.”

I’ve been wondering what was going on because I’ve been making mistakes on my Sudoku puzzles lately. I got into one that said it was quick and easy and it took 45 minutes for me to finish. But even some of the old standbys have taken way too long to finish. I guess that’s in keeping with what’s going on though. My thought process has been messing up; I figured it was just me.

Before you get too upset, there are a couple of things that we’ll try. Amy, the doc said that he’d get the paperwork back to me very soon, maybe even tomorrow. So, we can get started on that vaccine.

I’d still like to get a second opinion at HLM. I was hoping that I’d be in better shape so that I could enjoy a trip to Florida, but it looks like that’s not gonna happen.

And BTW, just so’s you know, I’m not concerned about dying. It’s all a part of life. And ever since I did get run over by a spotting truck, I have been kinda wondering about it. One of these days I’ll tell you all about it.

So, I’m going to post this and make a few calls. Kunolunkwa, y te quiero!

Dr. "Himmy" Is Sick...

...and didn't even bother to come in today. So much for that appointment.

The PET Scan went well, as far as I know, on Friday. And that's the results that I'm expecting to discuss today. So it looks like I'll have to go in later, 'long about 5:00PM, for a consultation with another doctor.

So, if I don't get something posted quite as early as you'd like, that's why.

I just realized that whichever way the consult goes, tonight might be a good night to get reaquainteed with Demon Rum, or a little bit o' the Irish, or whatever. I'll have to think about that!

Kunolunkwa, y te quiero!

BTW, in which universe does "shall not be infringed" become interpreted to mean "reasonable restrictions?"

Sunday, March 23, 2008

And TWO March 23 'Hoppy' Birthdays!

These birthdays today are a bit different from the others. Both of the people I refer to today have long since passed away. Benjamin L., my grandfather, was born on this day back in 1893. His son, my father, Benjamin B., was born on this day in 1928.

I vaguely remember my grandfather; he died in 1955. I would have liked to learn more about him from my father, but he died six years later, in 1961.

Four generations: grandfather, father, son, and grandson; all born within four days of each other. All with Benjamin in their names. What's so special about the first day of summer, anyway?