Friday, December 7, 2007

Round 4, Day 12

Well I suppose I could write some of this down instead of just thinking about it. That’s usually what happens to me. I get lost in the thinking and never get to the doing. And time marches on.

I can brush my teeth with toothpaste again. The tongue has healed enough that it doesn’t burn anymore. It was funny that my “magic mouthwash” burned my tongue before the lidocaine kicked in.

I spent over three hours shoveling the concrete today. Probably half that time was spent sitting, recovering my breath, and letting my muscles gain their strength back. Still more that I want to do tomorrow, but not too much anymore.

I cleaned most of the apron into the street. I cleaned enough that the snowplow drivers can see the curbs at the edge of the driveway but I left the two-foot section in the street. Basically just like what you saw in my first picture the other day.

Buoyed by Julie’s article, I emailed my oncologist with my cold feet concerns. Didn’t hear a thing.

I have been in email contact with my personal physician; at least I send them info. I ran out of one of my blood pressure meds today. I had been given 4 weeks of samples and was supposed to send in my BPs at two weeks. Did that; didn’t hear a thing. So I updated my BPs and sent that in last night, informing them that I would be out of meds today. Didn’t hear a thing all day. Tonight I got one of the office personnel doing a follow up. Seems the doctor wasn’t in today.

But it’s all good; it’s all good! I got a chance to talk with the young lady—she kept calling me Sir—about her trials with chemo. Yup, breast cancer. And she is right, you don’t know until you’ve been there. So, she was asking me my experiences with chemo and sharing her own with me. And she was taking notes!!! Smart girl!

She made a comment about not wanting to live her life in the recliner and I almost kissed her over the phone. That’s what the last week has been for me. She understands!!

And if this is what getting old is like, you can have it. I don’t want it!

Even though I was able to work outside for a while today, when I came in I crashed into the recliner. I was able to get up after a bit and fix store-bought Jambalaya for supper, but I crashed back into the recliner to eat and watch a movie.

Hmmm, oh, Die Hard 2. Yesterday I watched the first one. Tomorrow I might watch Die Hard With a Vengeance. Nice thing about losing your memory; all your old movies are almost like new again. :-)

I haven’t seen the latest, Live Free or Die Hard. So I’m catching up so I’ll be on track when I see the new one. I like the Live Free part. But I find that John is now working for Homeland Security; where’s the Living Free part?

Oh, no! John and Holly got divorced! Bummer! I like that actress’s name, Bonnie Bedelia. I used to work with a Bonnie and that was what I kept calling her. I could never remember her last name! She got used to it. :-D

The problem with my muscles isn’t that they are tight or that I’m building up lactic acid specifically. It’s that all the stuff breaking down in my system due to the poison, I mean the cancer drugs, and needs to get flushed out of my system. Por ejemplo, the Cisplatin—BTW, this drug is a compound of platinum, how expensive do you think that might be at $1455 an ounce?—removes the magnesium from my system. It doesn’t need to; it just does. So I’ve had to increase my intake just to keep up.

So between removing stuff that they don’t need to and killing stuff that then needs to be removed, my poor circulatory system is working overtime. Probably why my heart rate is so fast.

So, that’s it for me. I’m recovering now, just not as fast as before. I’m gonna go play in the tub for a while, and then catch an episode or two of Dark Angel. I’ll check back in before hitting the hay!

Hey! Merry Christmas!

Thursday, December 6, 2007

And Today Makes 7

OK, so I have sore muscles, or should I say ‘sorer’ muscles today. As long as I don’t do anything, I’m fine. But when I start to use my muscles, I get all twitchy and shaky and have to almost lay down for it to go away. I don’t even like to sit in my office chair for very long although I can recline there somewhat.

I’m sorry, Nettie, I didn’t see your comment on the 5th, and it didn’t show up in my email like it is supposed to. NP Nancy said that the body remembers the painful process of last time and can’t respond as well this time. Which means, either she lied with the good news/bad news routine or I get to look forward to more fun the next time. Or both.

Although, Saturday Nurse Martha had opined that they hit me hard and then they hit me soft with the chemo. So maybe the next round will be softer.

Speaking of Round 5, it’s off my calendar for now; I have to have another PET Scan. I had the follow up for the scan scheduled before I had the test scheduled. And, I had a Nutritional Consult scheduled without even knowing it. They’re going to put my schedule together and SEND IT TO ME IN THE MAIL!!!!!!! And we all know how much of an effort the City and Federal Governments are committed to for delivering my mail, don’t we?

But I am going to have to train Ben to bring the mail in for me. I’m not going through all the effort of getting dressed and all bundled up just to go out to the mailbox.

SIL Julie sent me an article about cancer patients using the computer to document their symptoms with their doctors.

Having cancer patients report to doctors on their symptoms and side effects
online may improve their care, a new study finds.

Even the sickest cancer patients are willing and capable of reporting their symptoms online, says a team from Memorial Sloan-Kettering Cancer Center in New York City.

"Cancer care has become increasingly complex, causing office visits to become more compressed. This makes it challenging for the clinician to comprehensively assess each patient's symptoms in that brief window of time," study author Dr. Ethan Basch, a medical oncologist, said in a prepared statement.

"Because cancer therapies can be highly toxic, early detection of symptoms and timely treatment is vital. What is exciting to us about online self-reporting is that patients can alert clinicians to crucial symptoms in real time," Basch said.

“Reporting their symptoms may improve their care.” Ya think? “Compressed office visits” is something I have been concerned about. And not being able to remember all the things I wanted to tell him. Especially since I very rarely see a doctor anymore; I get the second string.

Anyway, Julie’s article led me to further research and I found out a few things that might be applicable to my situation. The cancer drugs kill cells in my body. They kill fast growing cells to target the cancer cells, but they also kill other cells in my GI tract. And they kill tumor cells, and brain cells, etc. When a cell dies, the body tries to get rid of the parts of the dead cell that it can’t use. All the poisons and toxins released from that cell get dumped into the blood stream and circulate though the body, affecting everything they come in contact with.

Over Thanksgiving I visited a friend in the hospital because a clot of material, blood or otherwise, got dumped into his bloodstream, made it’s way to his lung and took up residence there. The doctors had to persuade it to “move along.”

So, I’m having all these cells in my body dying and giving up their little carcasses to my bloodstream. And over time all this stuff builds up. Wouldn’t it make sense to undergo some “body cleanse” to help rid the body of these toxins? I could be doing an herbal body cleanse designed to remove the crap. But I forgot, doctors don’t believe in herbs. They'd rather I suffered for their beliefs.

The part that had me worried, though, was the description of the breakdown of the tumor. Yes, some of it might end up leaving via my intestines, but other portions can leave via the blood supply to and from the tumor.

Which makes me wonder about the symptom that I reported to NP Nancy about the sharp pain in my right chest that I had over the course of a couple days. But then I forgot to mention the cold feet that I have been experiencing, even though I’m all bundled up.

A build up of lactic acid in the muscles can produce the muscle symptoms I describe. A build up occurs when there is insufficient flow of blood to the muscles to flush out the byproducts of muscle use. And cold feet occur when there is an insufficient supply of blood to the feet. Sounds like a whole lot of insufficiency going on. But what do I know.

I haven’t had to edit this as much as I’ve had to lately so my brain might be starting to recover, as well. Usually, I make all sorts of mistakes that I have to go back over, try to find, and then to correct. It’s getting easier so I just might have to go back to my inbox and start following up on those.

I started to take a bath earlier but was too tired to do even that. Maybe I can still do that tonight. I am glad that you guys have no idea what I’m talking about when it comes to all this fatigue. I really wouldn’t want you to experience it. It’s not a lot of fun let me tell you.

I’m hoping that I can be ‘near normal’ over the holidays when everyone will be home.

Christmas Schedule


Hello all!

I wanted to give everyone a heads up on my Christmas Schedule. I will leave Tampa very early on 12/15/07, driving with my mutts, to Green Bay. So, hopefully, I'll get there on the 17th. My boyfriend, Mike, will fly in to Green Bay around 8pm on 12/21/07, and leave around 10 am on 12/24/07. While this doesn't provide much time for visiting with him, his schedule is restricted by spending time with his son for the holidays, which I completely understand and respect. He wanted to be able to see my family, too, though, so will come to GB for the only free days he has around the holidays. What a guy ;-).

I'm actually not sure how long I am staying in Green Bay. It will depend on a couple of things, but I will probably begin the drive back around the 27th or the 3rd, depending on how long Ben and Dad can put up with me and my monsters ;-).

Looking forward to seeing everyone!

Amy

Wednesday, December 5, 2007

Now I Lay Me Down To Sleep...

...If I should die before I wake, I want you guys to sue the City!!

OK, I am feeling better a bit. The problem with that is that I think I can do more. :-D

I went to have my labs done and to follow up with the VLCC. They found that I was low on magnesium again and put a bag in me. Then I went grocery shopping. Between them both, I was plumb tuckered out. So, I made supper about 3:00 and started my Dark Angel series again—I ran out of NCIS—while I ate and rested.

Then I did something foolish.

We had snow here a while back. My roommate went out and shoveled for me, bless his heart. But I didn’t tell him about all the little rules and I was too exhausted to supervise.

You would think that when it snows, the City should clean the streets, curb to curb. They don’t! They get within a half a lane and call it a day.

Well, the Federal Government, in the form of the United States Postal Service, can’t and won’t drive though that half a lane of snow to deliver the mail. What was that about “Neither rain nor snow…?” ‘Course I can’t really blame them. But what does the USPS do? Do they call the City and tell them that they can’t get close enough to the mailbox to complete their appointed rounds?

NO!!!!!

They reach or walk across the snow and put a little card in the mailbox explaining how they’d like the property owner or renter to shovel the frickin’ STREET!!! I wish I had my scanner hooked up. You'd like the little diagram. The card explains how they're not permitted to exit the vehicle to deliver mail.

OK, my roommate did call and say that he’d blow out in front of the mailbox when he got home from work. But he works second shift and it’s already cold out there. It’s supposed to get down to 6 bone chilling degrees tonight.

And all I was going to do was run the snow blower to clear away in front of the mailbox so the mailman could deliver my bills and their junk mail. I should be able to hang on and remain standing and let the blower do the work, right?

It was more than I bargained for! The snow was packed hard. I had to break up the snow with a shovel. You can see that in the first photo. So there I am fighting a bucking blower mere inches, literally, from oncoming traffic,

If you look at the photos you will see wet road inches from the snow bank. That’s where the car's tires were rolling when I wasn’t right at the edge of the snow. And remember, my blower is 24” wide: two FEET! From the photos you’ll see that means I had four feet of roadway to clear! In the last photo you can see where the concrete curb and gutter ends and the asphalt roadway begins.

I thought that government was supposed to take care of us, not the other way around. It’s pretty bad when a 56-year-old cancer patient on chemotherapy has to do the work for the City.

That’s it for me. I’m going to bed. I know it’s early but darn it, I am really worn out!

Talk quietly amongst yourselves.

Monday, December 3, 2007

Bad Day 4

But not as bad as the last three! I’ve been up and down a lot more today than the last three days. That has to mean that I’m getting better, or getting used to it. :-) But I’m still not ready to do much of anything but vegetate. And I just realized that I have a headache. When you try to block it all out, sometimes it works. Now that I’m thinking about it, it rears its ugly head. Gah!!

I still have the muscle weakness although the shakes have decreased somewhat. My complete alimentary tract has been affected. The mucosa of the mouth has changed character almost overnight. The two “white-covered” sores have shed their cover and are now red, and hurt with the introduction of food. Actually, I consider that good. However, the back of my throat had turned a mottled red and could presage more sores. And, any acid in the mouth now causes pain, as does hot items. So the peppermint tea that I’m trying to drink has to cool a lot more!

The lower GI tract still continues to give problems—not often enough to be a big problem, just an annoying one—that requires the use of the Lonox/Lomotil. Remind me to buy stock in Big Pharm, will you?

My temperature has been consistently at least one degree lower than your “normal” over the last few days. However, the last few hours my temp has proceeded to climb, taking me to your “normal” and surpassing that slightly. That would explain why I have started to sweat, but my feet are still freezing. Go figure!

Since an elevated temp is necessary to get any action from the doctors in the way of any intervention, we’ll have to see what tonight and tomorrow brings.

I’m using bigger words and getting verbose; that means my mind is coming back somewhat as well. Not enough to even bring to mind the things that I wanted to accomplish today, until now, however. Darn! Remind me to use my pocket PC for a To-Do list, will you?

Because it takes me quite a while to marshal my thoughts sometimes, I put together a series of items I want to say in a draft and add to it as I think of things. I was doing that two weekends ago for an email that I haven’t gotten around to yet (SORRY) when I ran across a quote by Mark Twain. Now, I have an online friend who likes to quote Twain, so I have a tendency to pay attention when I read Twain. And it was one that I wanted to use in that email, but I’m going to use it here.

I am aware that when even the brightest mind in our world has been trained up from childhood in a superstition of any kind, it will never be possible for that mind, in its maturity, to examine sincerely, dispassionately, and conscientiously any evidence or any circumstance which shall seem to cast a doubt upon the validity of that superstition.
Now, Will Rogers is credited with putting it another way, "It's not what we don't know that hurts, it's what we do know that ain't so." I’ve always tried to break out of my “superstitions” and look at things as objectively as possible, although there are some who will disagree with me.

BTW, I say ‘credited’ with the quote, because I have read some disagreement about the source. It doesn’t mean that he didn’t say it, though.

One of the signer’s of that treasonous, anti-government document, the Declaration of Independence, Dr. Benjamin Rush (a medical doctor) is “credited” with having warned us against our current situation over two hundred years ago:

Unless we put medical freedom into the Constitution, the time will come when medicine will organize into an undercover dictatorship to restrict the art of healing to one class of men and deny equal privileges to others: The Constitution of this Republic should make a special privilege for medical freedom as well as religious freedom.

Sunday, December 2, 2007

Bad Day 3

Just an update on me, today is as bad as yesterday. So I’ve spent the last 3 days in the recliner. My temperature is below normal, so it wouldn’t appear that I am “sick” although I do have a cough. And I’m down about 10 pounds, 184 this AM. Oh, well.

I did get dressed and went out to get the snow blower started. I tried to tell Ben how to do it from memory, but we know how that works, don’t we? I needed to see the unit. I was pleasantly surprised that my efforts last spring made starting it pretty easy this time. As it was, Ben spent an awful lot of time out there doing what I’ve always done for myself. Do you know how frustrating that was for me?

But I’m still having trouble moving around. My muscles once they get started just keep shaking, especially the thigh muscles. Don’t know why, but I may call a nurse or something tomorrow.

Tonight, I’m going to take a hot bath and hit the sack.

PS: There are folks who are coming to visit during the holidays and they'd like to make plans to see who they can see when they are here. If'n you're going to be headig this way, to see me or the family, let me know so I can pass the info on: who, when, etc. Today, Amy said she should be showing up before Round 5 starts. I'm looking forward to it.