Fever is still just below 100, so that’s cool. I’m curious what is fueling the fever, but right now, I don’t know. But, receiving a phone call early this AM, if 9:19 is early, exacerbated the pain in the hip. I had forgot about the hip being so rudely from a sound sleep, and tried to get out of bed too quickly. So it’s been acting up all day. It doesn’t cause pain that requires me to do something different while walking, but it does ache. The pain actually goes down the front of my thigh to the knee. AND, the tops of both my feet have been feeling an unusual pain there as well. Not a clue what’s going on there, either.
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I ran across another cancer blog while looking for some info on sweating. The guy has been doing this longer since he has kidney cancer. Currently he’s in the hospital having fluid drained from his abdomen. His daughter/wife—I don’t know which—is posting for him. The little I read brings back memories. I sat there nodding my head going, “Yup, yup! That’s what it’s like.” I hope he does well.
He is from Georgia and has a friend from California who also has a blog who is in a similar boat. I didn’t realize that I had had such a good idea when I started mine. We should compile a list of cancer bloggers and publish it somewhere.
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The phone call this AM was from Moffitt, asking for some info and for me to obtain some info from my current supplier. I’m curious why ABCMC hasn’t provided the info and the quantity required. I need ALL my imagery and they gave me only the last PET Scan for Moffitt. I need the original biopsy slides plus all the chemo records. Looks like I have to get more involved again. *sigh*
Another issue is that the earliest they can get me in, so far, is May 12! I explained that I had to wait to find out when I would have the time because VLCC doesn’t answer questions about the “what is next” kinda thing. And since I have been given 3 to 6, May 12 represents almost 2/3rds of my minimum. That doesn’t leave them much time to “save” me. So we’ll see what they have to say, if they can move things ahead at all.
So, Kunolunkwa, y te quiero!
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2 comments:
"We should compile a list of cancer bloggers and publish it somewhere."
Hhhmm, interesting you say that. I've had that very thought, only about your blog alone. I could compile all of your posts, edit, and publish your blog as a "cancer journal." What do you think? If I did that, who would you want the audience to be? Would you want it to be a "self-help" book? A book of advice? A social criticism of the U.S. medical system ;-)? What do you think?
I may be being overly ambitious here (since I can barely seem to finish my thesis, MUCH LESS an entire book), but I think the world would benefit from reading it, so why not?
Thank you, daughter! What a nice thing to say.
I don't know that my rants would mean much to anyone. I don't think I'd be able to help other sufferers unless what I'm doing right now and in the immediate future helps me get through this.
As a former QA guy, looking to make systems work better and easier, I have had a big problem with the socialized medicine I've had to endure. But that goes back to the socialist government we've inherited from decades of bad governmental choices.
I know that you and I don't always see eye to eye government-wise, so that might make things somewhat difficult for you to understand my viewpoint.
But you have brought to a head my need to "tell my story" about how I believe I got in this condition. After that, we can talk.
Thanks again, and please, please, remember that I do love you! Lots!
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