Tuesday, January 8, 2008

I’d Like To Teach The World To Sing...

...in perfect harmony, but I’m too sick to do so.

After having visited the VLCC last Wednesday with a blood clot and Monday for follow up blood tests, you would think that all those doctors, nurses, and nurse practitioners would have noticed that I was sick with a nasty cold. Let’s see, chemically-compromised immune system, one in ten chance of surviving the next five years, you would think that someone would pay attention to the customer, I mean patient.

I hardly got any sleep last night I was coughing so badly. My stomach muscles and the muscles behind my eyeballs hurt this AM from coughing so hard.

So I called a nurse hotline sponsored by my insurance company and talked to Nurse Sheila. Overall, it went well. Found out that she was pretty sympathetic, even after explaining my medical affiliations. You know, Complimentary & Alternative Medicine.

She gave me some non-medical things to do to help my condition, including postponing my Radiation Therapy tomorrow, and Chemotherapy on Friday until my fatigue lessens considerably.

Called the Clinic and the best I could do is get them to think about it. If I go through with therapy, you have my permission to shoot me, or commit me. I have to be at the clinic by 8:00 for lab tests and my GP by 8:30, then back to the Clinic before 1:00 Radiation Therapy.

Amy, your “experienced” oncologist, Dr. C, had to ask me why I was wearing a facemask, yesterday. Then he wanted to know how my blood clot was. WTF? Since they saw it on ultrasound with nothing more than the swelling to alert me that something was going on, HTF should I know?

From my use of those initials, you have to surmise that I’m pretty pissed and discussed changing doctors with my insurance company nurse. I mean five oncologists/ NPs in five courses of chemotherapy?

Later in the day, my temp went to 101.3, so I called the clinic back. I finally got them talked into using up the other three Levaquin. I took one today and fired up the humidifier. I think my congestion is breaking up somewhat. Temp’s up to 101.4 but I’m chilled in a humidified room that’s 70 degrees.

And I haven’t even eaten anything today. No wonder the nurse suggested I call my insurance company to see what kind of outside help I can get.

I talked Dr. C into allowing me to use my Omega 3 Fish Oil. By the time I get done, I’ll be back on all my CAM supplements. :-)

I’m going to end this here. I need to take something in my stomach and a hot bath. And, if you get a call from me, I may need help getting out of the tub. And I may need Ben to drive me in in the morning. I hate to wait until the last minute to find out.

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