Thursday, January 3, 2008

Correcting my father ;-):

- They aren't roses, and they're dots SOOO tiny, you have to point them out for them to be visible. They're barely tattoos ;-)!!

- There are tons of folks older than you! I know you may not feel that way right now, which I totally understand, but you're not that old ;-). That's partly why this situation is understandably so hard to deal with.

- To help explain the stats you quoted a bit.... Docs talk in terms of "five year survival rates." They rarely tell people things like "you have ___ years to live," 'cause that was never accurate anyway. So, the surgeon had said that, WITHOUT surgery, there is a 10% chance you'll be alive in 5 years. WITH surgery, there's a 30% chance you'll be alive in 5 years. The next day, your Oncologist clarified those numbers by saying that, because your cancer had metastasized, those rates ARE worse for you. Now, neither one really specified what role the 6 weeks of radiation will play in those numbers.

- Sorry for the brutal honesty, its even hard to write it, but that's what that all means. I admit, even though I KNOW all this stuff intellectually, those stats were the hardest part for me to hear, as a daughter. That, and the fact that the docs insisted on using the word "palliative" instead of "cure" because you are "Stage 4 w/ Metastasis." They will never use the word "cure" for someone Stage 4 or higher, only "remission" if they are completely successful.

- Now, all that being said, the surgeon was the ONLY one who seemed really motivated to get Dad on the table and cut him open. All other docs have said that the surgery is extremely invasive, would not prevent cancer from coming back elsewhere, especially in the lymph nodes where it has already been detected, and would be "life-altering." The purpose of it would be to alleviate symptoms the tumor is causing and to extend Dad's healthy comfortable years. So, the docs, as well as Dad, have expressed the desire to save surgery for an absolute last resort. On a positive note, the surgeon was clear that Dad would NOT be an invalid or incapacitated after the surgery, but his relationship with food and eating would be forever changed. Not too fun.

- So, sorry for being a downer, but having witnessed the Dad-doctor conversations en masse lately, I wanted to catch everyone else up to speed a bit. As hard as it is, its important to be realistic about it all. Now, all that being said, there are no NEW side effects with radiation, so that therapy won't be any WORSE than the chemo so far. Plus, Dad is taking his IP-6 and reports feeling a bit better. There are other "alternative" therapies that may be available. AND, statistics are, by definition, general. There are always those at the extreme ends of the spectrum that defy all odds, anyway ;-).

Sorry I didn't post any of this sooner. It takes a while to process it all. Plus, we were pretty busy when I was up there.

xoxox,

Amy

4 comments:

Anonymous said...

Thanks for the nuts and bolts of it all, Amy. Hard to hear, yes....but I now have a much better picture of what's going on.

I'm glad you made it home safely.

Anonymous said...

Thank you, my beautiful little professor. I love you lots!

you, and your Dad and brother, are always in my prayers!!

Anonymous said...

Hal, just a word to the wise. At times, radiation tx can irritate the skin. Do take care to look carefully at the areas being irradiated, avoid harsh detergents and soaps, and make sure to wear very soft clothing. I wish you well.
All mine,
KMMK

-HB said...

Thanks, Kris, for the heads-up. And the prayers.

The radiation ooncologist did mention that there might be issues after two weeks of treatment, or so. Just what I need, more issues! :-)

I do have some lotions that may help allieve some of the skin irritations, though.